Blog posts about sicklecell

Attachab Originally uploaded by Dadamac Community One of the benefits of using a Skype typed conversation for the weekly UK-Nigeria meetings was demonstrated this week. For despite not being present (and because I was invited in my absence) I have been able to look at the archive, catch up with the news from Fantsuam Foundation, and consequently write this blog! Firstly, the Dadamac team welcomed Jim, the new VSO volunteer. Jim will be helping John Dada develop the site at Attachab over the next 6 months. Having visited Attachab and met the village chief on Monday, Jim told us all...

Fantsuam was selected to participate in the first SC Cohort study in Nigeria. A sustainable Pilot Scheme This project aims to improve survival and quality of life for children with Sickle Cell Disease (SCD) by instituting early infant diagnosis and establishing standardised care that is sustainable through capacity building of service provision in a comprehensive manner from laboratory diagnosis, prevention, treatment and rehabilitation. The project will be implemented in Nigeria, the country with the highest disease prevalence, with the help of UK-based doctors, largely Nigerian migrants. The issue is particularly relevant in the targeted country in that the majority of...

The First Lady and Mrs Usman witness a test on an under-five. Originally uploaded by Dadamac Community This is Cicely's (VSO volunteer at FF) edited account of the UN Sickle Cell Awareness event which Fantsuam Foundation was instrumental in organising. "Sickle Cell Anaemia – these are words which most Britons will recognise. In fact I’m sure they would be recognised by most societies that have large population of West Africans. Except perhaps in Kafanchan, or indeed much of rural Nigeria.

Wednesday's weekly online meeting between the UK and rural Nigeria came up against a familiar enemy - connectivity problems. Initially things looked bleak as we faced a long time delay with receiving and sending Skype messages. However, following a quick exchange of SMS messages the meeting was finally able to start, allowing John Dada to appear online for half an hour to bring us up to date with the latest news. We were pleased to hear that the ESSPIN programme is now well underway and are looking forward to seeing the photos. John also informed us that preparations for the...

Sickle Cell Awareness day was created by the United Nations to recognise Sickle Cell Disease as a global health crisis. Member states were urged to raise awareness of this terrible genetic disease on June 19 each year. And John Dada and his team at Fantsuam Foundation have already started to action this call. At yesterday's weekly UK/Nigeria Dadamac team meeting, John explained that a SCD support meeting had been held at Fantsuam last Saturday . A documentary in collaboration with the Abuja SC Support group is being prepared for showing on this year's Global SC Day. Those interested can view...