Blog

Fantsuam was selected to participate in the first SC Cohort study in Nigeria. A sustainable Pilot Scheme This project aims to improve survival and quality of life for children with Sickle Cell Disease (SCD) by instituting early infant diagnosis and establishing standardised care that is sustainable through capacity building of service provision in a comprehensive manner from laboratory diagnosis, prevention, treatment and rehabilitation. The project will be implemented in Nigeria, the country with the highest disease prevalence, with the help of UK-based doctors, largely Nigerian migrants. The issue is particularly relevant in the targeted country in that the majority of...

Nearly half this week’s UK-Nigeria online meeting was spent discussing the Knowledge Resource Centre (KRC) at Fantsuam Foundation (FF) - but it was well worth it! Kelechi, Director of Fantsuam’s Academy, and recently-appointed KRC Officer Ladi updated the UK on their plans for the KRC, with the help of John. Kelechi told us: “Presently, we are reviewing the Workplan for the KRC, working out a good strategy towards more purposeful service delivery.” He added that “the KRC is custodian to all learning resources of the Academy”. John explained that they see the KRC being “a learning hub - a repository...

The Fantsuam Foundation team could have been forgiven had they spent the whole hour of last Wednesday's UK-Nigeria online meeting talking about the success of their UN Sickle Cell Awareness day which had taken place just a few days earlier. However, they knew the UK team had already been fully updated about this superb event via Cicely's blog, John's report about the radio panel and, of course, by viewing the great photos taken by those on site. So instead we moved on swiftly to the next pressing issues. John started the meeting by explaining that it had been a "hectic"...

Radio Panelist UN Sickle Cell Awareness Day Originally uploaded by Dadamac Community John has just sent me an update and a photo about the UN Sickle Cell awareness day that he and Fantsuam Foundation organised. John tells that: "We had a radio panel discussion yesterday (18th) and the feedbacks we got were very encouraging. The TV Panel discussion was recorded in open air. We had two genetic counsellors, two parents and a sickle cell patient on the panel to share experiences and raise awareness about tomorrow's event.

The First Lady and Mrs Usman witness a test on an under-five. Originally uploaded by Dadamac Community This is Cicely's (VSO volunteer at FF) edited account of the UN Sickle Cell Awareness event which Fantsuam Foundation was instrumental in organising. "Sickle Cell Anaemia – these are words which most Britons will recognise. In fact I’m sure they would be recognised by most societies that have large population of West Africans. Except perhaps in Kafanchan, or indeed much of rural Nigeria.